Empowering Hope & Healing Through Education

  • Home
  • About Us
  • Family Blog
  • Shop
  • Charity Art Auction
  • Maddie's Light
  • Maddie's Hand
  • Contact Us
  • Book a Presentation
  • Recipes
    • BlueberryYogurtCheesecake
    • Choco Banana Berry Yogurt
    • Creamy Thai Pumpkin Soup
    • Honey Lemon Ginger Tea
    • OvenBaked Kielbasa & Rice
    • Parmesan Potatoes & Eggs
    • Peanut Butter Chip Cookie
    • Raw Energy Drinks
    • Salmon & Cumin Carrots
    • Thanksgiving Meal Recipes
  • Trips & Events
    • Enchant Christmas Lights
  • Care Giving Quirks
    • G-Tube Care Routine
    • G-Tube Tips & Resources
    • Hearing Aid Help
    • Holiday Resources
    • It Never is Easy to Hear
    • Music Organizations
    • Peach's Neet Feet
  • Home Hacks
    • Cooking with Cast Iron
    • Essential Oils
    • Fruit & Vegetable Guide
    • Kitchen Tricks
    • Natural Egg Dye
    • Re-Purposed Glass Jars
    • Sample Meal Calendar
    • Thanksgiving Meal Plan
  • Incarceration Insights
    • The Mark
  • Random Research
    • Wolf & Human Mothers
  • More
    • Home
    • About Us
    • Family Blog
    • Shop
    • Charity Art Auction
    • Maddie's Light
    • Maddie's Hand
    • Contact Us
    • Book a Presentation
    • Recipes
      • BlueberryYogurtCheesecake
      • Choco Banana Berry Yogurt
      • Creamy Thai Pumpkin Soup
      • Honey Lemon Ginger Tea
      • OvenBaked Kielbasa & Rice
      • Parmesan Potatoes & Eggs
      • Peanut Butter Chip Cookie
      • Raw Energy Drinks
      • Salmon & Cumin Carrots
      • Thanksgiving Meal Recipes
    • Trips & Events
      • Enchant Christmas Lights
    • Care Giving Quirks
      • G-Tube Care Routine
      • G-Tube Tips & Resources
      • Hearing Aid Help
      • Holiday Resources
      • It Never is Easy to Hear
      • Music Organizations
      • Peach's Neet Feet
    • Home Hacks
      • Cooking with Cast Iron
      • Essential Oils
      • Fruit & Vegetable Guide
      • Kitchen Tricks
      • Natural Egg Dye
      • Re-Purposed Glass Jars
      • Sample Meal Calendar
      • Thanksgiving Meal Plan
    • Incarceration Insights
      • The Mark
    • Random Research
      • Wolf & Human Mothers
  • Home
  • About Us
  • Family Blog
  • Shop
  • Charity Art Auction
  • Maddie's Light
  • Maddie's Hand
  • Contact Us
  • Book a Presentation
  • Recipes
  • Trips & Events
  • Care Giving Quirks
  • Home Hacks
  • Incarceration Insights
  • Random Research

It Never Gets Easy to Hear

I don’t know what other options we have. These words haunt special needs parents because for most of us, at some point in our child’s journey, in fact, usually several times, we here this. Whether it be about something as small as orthotics not fitting properly and being in between sizes, or something as big as organ failure, it always feels the same. That same gut punching feeling. Several times through out Madeline’s journey I have been told we were out of options, even in worst case scenario’s that her life would likely end soon. Does it make me angry? You bet your ass! Do I feel like asking them what the heck they were thinking telling a parent that? Sometimes, but at the end of the day I chose to change their minds with positivity and humility. By bringing my daughter back into the same hospital that sent her home to die, and not only allowing the doctors who said she wouldn’t survive very long to care for her but to learn from her. I have an outstanding relationship with her medical team. Despite using whole plant cannabis oil to treat her untreatable disease, because of our advocacy, because we chose to open ourselves up to them as a resource we have a comprehensive health plan which includes all her health care needs, including cannabis. 


Maddie is what I call stably unstable. Some days are good, and some days are downright scary. Blood transfusions, hospice, and a failing liver keep us constantly on our toes. It never gets easy waiting for your child to die but when you shift your perspective and realize that none of us really knows how much time we have and THAT is why we must embrace every moment of our life, then hope can really thrive.


Copyright © 2019 The Hand That Heals - All Rights Reserved.


Powered by GoDaddy Website Builder

MADDIE'S MEMORIAL CHARITY ART GALA

To honor the legacy of light and magic of little Maddie we are hosting a charity art gala to benefit 3 amazing charities; Seattle Children's PACT, UNM Mariposa Program, and The Princess Program. 100% of the proceeds from this gala minus the cost of shipping will go towards supporting these charities. Follow the link below to place your bids!

Shop the Gala & Place Your Bid